“I just see nothing. It’s literally just black”: a qualitative investigation into congenital aphantasia
Abstract
Aphantasia, the inability to form voluntary sensory imagery, is a newly emerging field. While quantitative evidence regarding the prevalence and profile of aphantasia is increasing, few studies have sought to understand in-depth the perspectives of those who have experience. The present study adopted a qualitative approach to gain insight into the experiences and perceived impacts of congenital aphantasia. Six female congenital aphantasic participants were identified as aphantasic through the Vividness of Visual Imagery Questionnaire (all VVIQ = 16). Semi-structured interviews collected participant understandings, perceptions and experiences of aphantasia, which were then analysed thematically. Difficulties surrounding autobiographical memory, orientation and facial recognition most impacted everyday life, and autobiographical memory issues could impact sense of self. Others constructed their sense of self around their missing abilities. Other sensory domains and emotions also appeared to be impacted in varying ways. Participants felt images were ‘there’, but could not consciously access them, although some had found ways to access unconscious images, and all experienced dream imagery and involuntary images in highly emotional states. The findings propose new research questions in a range of future investigations, as well as further understanding of what it is like to live with aphantasia.
Authors
- Zoë Pounder6
- Grazia Agosto1
- Jay-Marie Mackenzie1
- Anna Cheshire1
A Qualitative Study of Congenital Aphantasia
Study Overview
Key Findings
Major Daily Life Challenges
- Unable to visually recall faces of even close family members
- Could recognize people when physically present but not mentally picture them
- Used verbal descriptions and facts about physical characteristics to identify people
- Caused embarrassment at work (e.g., teachers not recognizing students)
- Some worried about not recognizing loved ones at meeting places
- Most significant impact reported by participants
- Could not "relive" past experiences visually
- Needed prompts (photos, verbal cues, visiting locations) to recall memories
- One participant poignantly stated: "Your life is your memory. Who you are is what you can remember about yourself"
- For some, this affected their sense of self and identity
- Mixed experiences: some had good spatial awareness, others felt anxious about finding places
- Could remember spatial relationships without visual details
- Map reading abilities varied considerably
Compensatory Strategies
- Verbal/semantic strategies: Using words, descriptions, facts, and narratives instead of images
- Knowledge-based memory: Relying on concepts and meanings rather than pictures
- External aids: Taking extensive photos, making notes, writing things down
- Drawing/doodling: Some used drawing as a way to access images unconsciously
- Relying on others: Partners or friends helped remember information
Beyond Visual Imagery
- All six participants couldn't imagine smells or tastes
- Four couldn't imagine sounds
- Two had no internal monologue/voice
- Some reported reduced emotional experiences or difficulty sharing others' emotional states
Involuntary Imagery Experiences
- Dream imagery: Varied from regular to extremely rare; some remembered dreams conceptually but not visually
- Emotional state imagery: "Flashes" during intense emotions (both positive and negative)
Psychological Impact
- Many initially didn't realize they were different or thought others had exceptional abilities
- After discovering aphantasia, things "made sense" and they recognized their coping mechanisms
- Reactions ranged from fascination to frustration
- Some felt disconnection between conscious mind and whole self
- Others constructed identity around their differences
- Some viewed lack of imagery as positive (less stress, enhanced other abilities)
- One participant found it harder to discuss than her cancer diagnosis due to lack of public understanding
- Repeatedly described feeling images existed "inside them" or in their subconscious but couldn't consciously access them
- Some developed techniques to access unconscious images (e.g., "unthinking," automatic drawing)
- One participant compared it to "a computer screen with the screen off"
Social Reactions
- Families and friends' reactions ranged from dismissive to disbelieving
- Some stopped sharing after hurtful responses
- Felt isolated due to lack of public understanding
- Facebook support group was helpful for connection
Key Insights
Research Implications
- Relationship between aphantasia and prosopagnosia (face blindness)
- Connection to SDAM (severely deficient autobiographical memory)
- Subtypes of aphantasia based on heterogeneity of experiences
- Relationship between voluntary and involuntary imagery
- Gender and ethnic differences in experience
Limitations
- Small sample (6 participants)
- All female, all White
- Recruited from single Facebook group
- Focused primarily on visual domain